SafeGuard—Detecting and Minimizing Wandering Incidents of Children and Adults with Disabilities
Lead PI:
Michelle Ballan
Co-Pi:
Abstract

The prevalence of developmental disabilities has increased significantly in the United States with one in six children ages three (3) to 17 now diagnosed. A common behavior among children with developmental disabilities is wandering---the act of leaving an area without supervision or permission. The impetus for wandering ranges from a benign desire to explore to an attempt tom escape uncomfortable sensory stimuli. Wandering often continues into adulthood, representing a serious health, economic and resource issue. Wandering behavior places affected individuals at elevated risk for psychological harm, injury or death. Current approaches to address wandering include physical barriers, such as gates or locks, alarm systems, and GPS/electronic surveillance systems. These approaches are limited in their efficacy and often infringe upon an individual's autonomy, privacy, and quality of life. This planning project aims to develop SafeGuard, a suite of non-invasive technologies that is founded on technical and social-science innovation to detect, mitigate, and de-escalate wandering events. SafeGuard will be designed as a system-of-systems that can be integrated with low-cost sensors and hardware into existing residential and commercial infrastructure. SafeGuard will also include predictive intelligence to identify individuals at a greater flight risk and the ways they might demonstrate their intent to wander. Several agencies working with individuals with developmental disabilities and their families, disability agency staff and first-responders comprise the planning effort to lay the foundation for a large-scale system to reduce wandering among children and adults with developmental disabilities.

The objectives of SafeGuard will be realized via the exploration of four distinct research questions: (1) How can the quality of life be improved for individuals with developmental disabilities who are predisposed to wander, as well as for their family members and caregivers? (2) Can sensor-based technologies be developed to detect wandering? (3) Can SafeGuard identify intent to wander through multimodal data streams? And, (4) Can SafeGuard de-escalate a wandering incident before and during its occurrence? The team will actively engage the numerous and varied stakeholders in meaningful dialogue and collaboration via an advisory group, focus groups, surveys and a pilot study. The team bridges the social sciences, engineering, and computer science from academia with individuals with developmental disabilities and the communities that serve them. SafeGuard will leverage new opportunities at the nexus of intelligent sensing, data analytics, and digital intervention to mitigate wandering and improve quality-of-life.

This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.

Michelle Ballan
Michelle Ballan is Professor and Associate Dean for Research in the School of Social Welfare, Professor of Family, Population and Preventive Medicine at Renaissance School of Medicine, and Director of the Leadership Education in Neurodevelopmental and other related Disabilities (LEND) Center at Stony Brook University. Her practice, research, and teaching aim to ameliorate societal barriers impacting individuals with disabilities. Dr. Ballan has authored more than 120 peer-reviewed papers and conference presentations and is currently the Principal Investigator on numerous federal and foundation grants from New York City Community Trust (2022-2024), U.S. Health Resources and Services Administration (2021-2026), National Science Foundation (2021-2022), Craig H. Neilsen Foundation (2021-2023) and American Academy of Developmental Medicine and Dentistry (2020-2022). Each targets reducing health disparities and improving quality of life for individuals with disabilities and their families through an interdisciplinary lens. She is the recipient of several awards and distinctions including 2022 National Academies of Practice Fellow, 2020 SUNY Chancellor’s Award for Excellence in Teaching and the 2020 Switzer Distinguished Level Research Fellowship from the National Institute on Disability, Independent Living and Rehabilitation Research.
Performance Period: 10/01/2021 - 09/30/2024
Institution: SUNY at Stony Brook
Award Number: 2125147